Being a Mom to a Speech Delayed Child

speech delay help

speech delay help

Most of the time, life with a child with a speech delay and special needs isnt difficult or different from life with a “normal” child.  I mean, when your little one comes running to you screaming, “Hey!” and then stops to grab your face for a kiss, it just melts your heart.

But when those times come that they desperately need your help, but they can’t communicate what they need effectively, it brings you both to tears.

And so explains my afternoon.  Bear was coming apart in my living room, but neither of us could say what was wrong.  She was using every sign and every word she could, but I just couldn’t understand.  I tried.  She tried.  But instead of helping, I was only making it worse.

It is in moments like these that I have learned only one thing to do.  Separate myself from her for a few moments so we can both get our emotions under control.

And all this took place while Baby Banana was screaming for a nap.

In the end, Bear needed a diaper change and her shoes changed.  She must have gotten ahold of some strawberries last night (she’s allergic) and that had given her a horrible rash.  And after she sprained her ankle the other day during Lion’s physical therapy, certain shoes are hurting her feet.

We survived, but it wasn’t without some shed tears.

What do you do when your children cannot communication what they need?  How do you work through those tense times?

10 Free Alphabet Printables #TopTenTues

ABC-Printables.jpg

ABC Printables

With the school year fast approaching, I have been on the search to find some alphabet printables for Bear.  She is a beast at her alphabet, which is a shock to us after her struggles with seizures.

When Bear was 5 1/2 months, she was diagnosed with Infantile Spasms, and our world was forever changed.  Later, after we got her seizures under control and she became seizure free off of medicines, we learned that she had a rare genetic mutation called 14 q 12 micro duplication.  With this overall diagnosis, we were told she may never talk and that she may have a hard time reading.

Well, she is proving the doctors wrong.  Not only can she talk, but she knows all of her abc’s and she can recognize them at random on alphabet cards.

So, I am seizing the moment to start doing some preschool work with her next school year.  And I am going to focus on the alphabet to help her learn new words as well.

In my search, I came across these great sites with printables to help her to do this.

1.  Alphabet Coloring Pages from Fisher Price.

2.  Alphabet Activity Worksheet from First School.

3.  Letters Coloring Pages (both easy and hard) from All Kids Network.

4.  Various Pages for Each Letter from tlsbooks

5.  ABC Alphabet Coloring Pages from Free Coloring Pages.

6.  ASL Alphabet Coloring Pages from DLTL’s Growing Together.

7.  Alphabet Coloring Pages from Mr. Printables

8.  Color the Alphabet from Tip Junkie

9.  Detail Alphabet Pages from Crayola

10.  Train Alphabet Coloring Pages from Coloring Pages for Kids

 

Now I have a great starting point for the school year.  Now to make copies and start my lesson plans.  I am excited already.

Linked up to:

Top Ten Tuesday at Many Little Blessings

End of a Season, Beginning a New {Mar 9}

Bear's Last Therapy Session

Bear's Last Therapy Session

Today’s picture post is going to be a little different than usual.  Call me a hormonal, pregnant mom if you want, but I just can’t help but celebrate where we are.

Back in 2009, which Bear was diagnosed with Infantile Spasms, the doctors gave us a very grim outlook.  We had to face developmental delays, mental retardation and even death square in the face.  The beautiful thing that came out of it was a child who was willing to fight against all odds and prove them wrong.

Bear did everything late from the point of being 5 1/2 months old on.  When her seizures came back, we were devastated.  All the hard work she put up for 2 months had to be redone.  And with it came even more scary proclamation.

When her neurologist found the cause of her seizures, 14 q 12 microduplication, we learned very little more of what to expect.  At the time, Bear was one of 9 to have this diagnosis.  They have since found a few more.  Because of the extra strand on her DNA, she might never talk, she would crawl and walk late and may never be able to do some of the things that normal kids could do.

But she kept fighting.  And she kept proving them wrong.

Bear crawled at 16 months.  She walked at 22 months.  And now, she says all kinds of word and tries so hard to say many more.  She is quick to learn new signs and is able to communicate her needs.  And she is smart!

No, I’m not just saying that.  Her therapists will tell you the same thing.

What do I attribute this success too?

First of all, Jesus Christ.  He is her ultimate healer and he is the one who pulled our whole family through every bit of the trials we went through with Bear and even Lion.

Second, early intervention therapy in our home.  Her therapists never believed for one moment that Bear would not succeed in life.  They encouraged us.  They pushed her.

Lastly, Bear is a beast!  I love my daughter and I wouldn’t trade her for the world.  She has taught me so much on how to live life to the full and how to laugh in the face of adversity.

So, today ends a season but begins a new one.  No longer is my house as much as a revolving door as before.  Yes, we still have therapy for Lion, but it isn’t the same.  Just one little one in EI is enough for me in my super pregnant state.

And as for Bear, may she keep shocking the world and doing great things!  I love you baby!

Disclaimer: Please ignore any typos.  I was literally crying like a baby when I typed this post, still am.  This is real, raw emotion.  What can I say, I am a pregnant, hormonal mommy who is so proud of her daughter!

Family Friday: What a Shame

family

Family…

This word describes the very essence of who I am.  Without my family, I would not be!

Without my mother and father, I would not be on this earth.

Without my husband, I would not have a best friend and a sholder to cry on.

Without my children, I would not know the feeling of joy and excitement of life.

And honestly, family would be nothing without faith.

My guess is you all know where this post is coming from.

I was saddened when I heard about the Duggar family’s miscarriage.  That life was lost and now no longer is.

But what made me even more unhappy was the response I have seen from so many people.  People who believe that it was God who caused her to miscarry.  It was God’s way of telling her no more.

All I can say to that is, hogwash!

Fact is, life is life.  My heart breaks for Michelle because she has lost the life of her child.  Frankly, how many children she has is none of your business.  She believes that birth control is wrong.  I am pretty sure she wouldn’t come up to you and tell you that you are wrong for believing it is okay to use.

I have read some comments of people today going on and on about how we need to read the handwriting on the wall sometimes.  Circumstances show us that we need to stop something or continue something.

Are you trying to tell me that because my two children are special needs that God is telling me I am unfit to be a mother?  Or how about I need to stop because it isn’t fair to them or society?  Aren’t you afraid something will be wrong with Baby #3?

Yes, sometimes I am.  But, I have come to grips with the fact that my baby is my baby.  Bear and Lion’s genetic conditions are completely unrelated.  We have had the testing and met with many genetic counselors about it.  So I am perfectly at peace about the whole thing.

And like I stated before, a life is a life.  My baby is precious and so was Michelle’s.  I just wish people could step back for a moment and recognize she is grieving before they slam her all over the Internet.  I mean, realize that those comments don’t help.  How would you feel if you lost a child, especially so late in the pregnancy?

Anyway, I recognize I am ranting and a little bit venting.  But, I wanted to put my thoughts out there.  People never realize how much their words can hurt, or how much they can be misinterpreted.

I heard on the radio the other day a man explaining to a family that they shouldn’t adopt a special needs child because their family would not accept the child and it would be too hard for them.  Broke my heart!

Bear and Lion may be special needs, but they are worth loving.  And so was this child.

So, maybe we should step back and spread a little love and not so much hate…

 

 

Wordless Wednesday: Paper Towel Clean Up {Linky}

paper towel mess

Welcome to another week of Wordless Wednesday here at MHA.  So happy to have you come and link up your favorite Wordless Wednesday pictures from the week.

This week, Lion wanted to share with you his latest fun adventure.

paper towel mess

How cute is that?  He had so much fun ripping those out of the bag.

Now it’s your turn!  Link up your fav Wordless Wednesday posts here.