When Bear Was Sick – RSV Awareness with MedImmune #RSVProtection

emergency-room.jpg

emergency room

When Bear was 5 1/2 months old, she began having seizures.  I remember all to well the night when we drove around 2 hours to our nearest children’s hospital, only to be told it was gas.  They humored me by putting me in an ER room, and at around 4 am, another round of Infantile Spasms racked her body.

I tried my hardest to take a video while pushing the button for help.  Of course Bear would wait for the one moment when Daddy Head stepped out of the room to do her thing.

The doctors put us in a room on the regular floor while we awaited an EEG that would forever change my world.  While walking the hallways, I would see rooms with special notices on the door stating the importance of wearing a mask and washing hands.  I wouldn’t understand the severity of this until hours later.

When Bear had her biggest round of seizures ever, the doctor told us our daughter would not be normal.  We caught the condition early, but still had to put her on a heavy drug that would knock out her immune system and her ability to fight infection.  Those above mentioned rooms would become our enemy of sorts.

You see, those children were fighting RSV, a common, seasonal virus affecting 2/3 of babies by age 1, and almost 100% of children before age 2.

RSV Infographic

Respiratory syncytial virus, RSV, is highly contagious and the germs can live on surfaces for hours, which makes daycare centers and other places where children are playing and sharing toys high traffic areas to contract the disease.

The typical RSV season runs from November through March, so when Bear was a baby, our many hospital stays brought us in contact with many families that were affected by the disease.  My heart would break for them because of the seriousness of what they were facing.  And it made me more aware of what to look for since we knew that Bear had to stay away.

RSV symptoms display themselves as the common cold, and can include:

  • Coughing or wheezing that does not stop
  • Fast or troubled breathing
  • Spread-out nostrils and/or a caved-in chest when trying to breathe
  • Bluish color around the mouth or fingernails
  • Fever (especially if it is over 100.4°F in infants under 3 months of age)

A child that has milder symptoms of RSV will likely be fine without a hospital stay, but keep in mind that they can spread the disease to others.  Once contracted, there is no cure for RSV, so if you think your child may have it, it is best to keep them home and away from others.

To get more information, be sure to follow #RSVProtection on Twitter and check out RSVProtection.com.

Disclosure: I wrote this review while participating in a campaign for Mom Central Consulting on behalf of MedImmune and I received a promotional item to thank me for my participation.

Family Friday: Time for an Update!

Things have been a tad crazy around these parts.  I updated you all a little bit on Daddy Head’s condition awhile back, but it has been some time since then.  We did receive a final diagnosis of a gallbladder that was not functioning, had surgery and are 2 weeks into our recovery.  It was rough for a season there, but Daddy Head is more of his old self now!  He just can’t lift anything.

We had our 20 week ultrasound for Baby #3, which was perfect!  The tech went above and beyond getting measurements to rule out Down syndrome.  Pairing that with a passed penta screen, things are good to go with #3.  We are looking to see him or her, since we kept the gender a surprise, on or around Easter Sunday, April 8th.

Bear and Lion are still doing great in their therapies and continue to bring us much joy in life.  Bear and her “pweese, Momma” and Lion with his almost being able to pull up to stand means many exciting moments in our house.

But none of them are as surprising as my overnight stay in the hospital this past Tuesday night.  I woke up Tuesday morning with a pain in my right shoulder, but just thought I pulled a muscle.  After heading to St. Louis for Daddy Head’s follow up appointment with his surgeon, I began have more pain in my abdomen and even had a time of hyperventalation.  When the pain was intensifying, we knew we needed to get me checked out.

After a few hours in the ER, they ended up admitting me for observation overnight to rule out appendsitis.  Turns out that my shoulder and stomach pains were unrelated.  Shoulder = pulled muscle.  Abdomen = GI virus?  They weren’t really sure what was wrong with me, just certain that it wasn’t preterm labor.

Good to know when you are only 21 weeks along.

We did get to see a good ultrasound of Baby #3 who performed nicely.  Did all kinds of flips and kicks and Daddy Head was finally able to not only see the movement but feel it.  Up until then, #3 was kinda stubborn and would stop moving anytime Daddy Head would try to feel.

So, that all being said, if I am a bit absent over the next week or so, please know that I still love you, but I am taking a break to recover.  Family is the most important thing to me, as you all know.  But, when I am around, I promise some good fun posts, okay?!

Oh, and before I go, just wanted to give you a chance to enter the two giveaways I have up right now.  You can find them here and here, or check them out on my sidebar.

And, while I am thinking about it, be sure to be a fan of my Facebook page and follow me on Twitter.  I also have a Google+ page now, which I would love for you to click on.  You can find the links above or my sidebar as well!

Thanks for your patience while I recover :)

Family Friday: One Year at the Down Syndrome Clinic

Down Syndrome Clinic

As I promised you earlier this week, I have quite the Family Friday story for you.  This past Tuesday we headed to the Down Syndrome Clinic in St Louis, MO in order for Lion to have his one year check up.  These visits are always long ones because the Down Syndrome Clinic coordinates all of our appointments into one day so that we don’t have to travel as much, which is nice.

This particular visit was going to be a check up with Lion’s geneticist, a behavioral hearing test and a check up with an ENT.  And then Daddy Head decided that we would go to a St. Louis Cardinal’s game for good measure.  This would be fun to have a little outing, just the three of us.  Bear stayed back with Grammy Head.

Our first appointment was at 10am, so we left the house at 7am.  We had a little car trouble, so we ended up having to take Grampy Head’s car.  This made the trip even more enjoyable.  Thanks Dad!

We thought we might be late, but ended up showing up 30 min early.  After waiting in the waiting room for an hour, we finally proceeded back.  Lion weighed in at 22 lbs 10 ounces and was 28 inches long!  Doing very well, Dr. Grange said.  We asked about his heat rash and the shape of his head.  She said that his head looked great, so the scare we had at the last appointment over a helmet was now gone!  Lion did well, even though he peed on the doctor!

Down Syndrome Clinic

We went out to our car and ate our lunch that I packed.  I nursed Lion and put him down for a nap while we were out there.  Little did I know that this would be a problem for his behavioral hearing test.  Let’s just say that we will be repeating that test at a later date due to screaming and fear ;)

Down syndrome clinic

Chilling in a chair waiting for the ENT visit

Lion had a lot of wax in his ears, so the ENT had to clean them out.  They found a little fluid in there, so we have to go back in 2 months to see if that is gone.  If not, we will talk about putting tubes in his ears since we dont want to risk hearing loss.  As of now, Lion’s hearing is perfect and his speech is right on track.  That is what we want to keep.

After we finished at the hospital, I got to do a little shopping at a mall and then we ate at the Whole Foods Market.  Next came the game!

Not sure why the picture was cut off but it was a good one

The game was fun and we won 8 to 1!  Lion had a blast, and fell asleep at the end.

Our day in St Louis was great!  And we don’t have to go back to the Down Syndrome Clinic for another year!  Hard to believe that my baby boy is getting so big!

What fun adventures have you been on with your family lately?